Friday, December 16, 2011

Additional_Testing_IEE!


If you feel that the school district didn't do enough testing, you as the advocate for your child can request and Independent evaluation at public expense. When asking for this, you MUST write a letter and be specific about your reasoning. This is not a cheap expense. If you do this on your own, it will cost you $2500 + to do this and most of it is not covered by your insurance. If you specify your concerns, it is easier to get this done. Remember advocating is not just about fighting. You are trying to nicely get along with these people and get them to understand your child's individual needs. Even though it might seem like a daunting task, writing a letter and spelling out your reasoning is a CYA (Cover your A$$) move. If you ever need to go to court or file for due process, you can show the judge that you made an attempt to work with the school district with your letter, dated and signed. Also remember to cc other members of your team. Your developmental pediatrician, child's teacher, etc. The more people who know the merrier. Everybody needs to be on the same page and in addition, the more that know, the more the school district can't play games with you. Below is a link to an actual letter I wrote that spells out my concerns and the reasoning behind asking for this type of testing. Because it certainly is not cheap, I felt compelled to address everything and prove that he needed the test, and not just because I want him to have it done. Remember you must be compelling in your argument to get things done. If you are not convincing, you may have to go a tougher route ( mediation, due process). This is your first step towards looking at your child's learning style and grasping if what you THINK is true, is confirmed.
Letter Asking for Independent Evaluation

Let me know what you think. I left our names in it so that you could see my actual thought process and what is specific to him.

Monday, May 17, 2010

We Shall Overcome! and we have!

Yes, it is official. My son William is going to graduate from Pre-K into Kindergarten. It has been a tremendous mountain to climb, but in the end, it has paid off in spades. He will be 5 in September and he will be graduating in a class of his peers. He is very verbal, smart, still a bit light in the social department but he is getting better. His biggest improvement is the fact that he is starting to notice when others are hurt or are in pain. He is compelled to ask if you are allright and wants to rub your back or your face to make sure you are not hurt. SO WONDERFUL! This from a child who 2 years ago, could care less what your facial expressions meant even when you were describing your mood. Now he feels pain, love, sadness, joy and expresses it every moment his he has. He has manners, always asks politely, the occasional tantrum here and there, but nothing like before (where he was kicking and screaming and flopping himself on the floor). He used to bite teachers and other kids, he used to push you around to get what he wanted. Now he asks you politely and with manners to get what he wants. He would kick his shoes off every chance he got. Now he could care less about that and concentrate on his math and trying to write his ABC's.
The other day, when I was picking him up from school, he was sitting at a computer and said "look mommy, i wrote my name!". He typed WILLIAM on the screen in all caps and I almost fainted in the classroom. When his teacher told me he was ready to graduate, my heart stopped. It has taken us so long to find a proper placement for him that I was afraid to embark on a new chapter of his life (finding another typical structured placement for him). But, his teacher insisted that he is smart and a quick learner and his behavior is much improved. I had to give in and say that I would be glad that he graduates to the next level and I never thought I would see the day. The day that my Autistic child would graduate in a class of his peers and be ready for the next level. Throughout all the struggle and heartache came this wonderful story of triumph and tribulation that I can measure and see from 18 months old until now. It is an amazing feeling to step back and not have to over analyze the behaviors and learning difficulties that have challenged him since he was barely 2. I can just sit back and bask in the glow of this moment and hope that there are more good moments like this than the bad moments we've had in the past. I am so proud of him. He brings me joy every day of my life and my life wouldn't be the same without him. Mommy loves you. I hope someone else can share there story of the Autism triumph as well.

Tuesday, June 9, 2009

I've returmed!

After many months of pain and struggle with school district personnel, I have returned. My son is in a better place and it only took 6 months for this to happen. I know unbelievable. I swear, this system they have going is set-up for the parent to literally fail unless they are persistent, read the rules, and remind the school district personnel about them or those people will lie to your face. I've gone to libraries, researched on the internet and dove my life into the task of finding a proper preschool for my son and I swear I had to be a part-time lawyer for atleast 3 meetings. I had meetings with at least 10 people at one IEP meeting and they presented me with 33 separate goals where we had to go through each and everyone of them to determine if they were ok. Most were, but we didn't even have enough time to go through them all. AND we disagreed on placement. I had a speech therapist tell me he didn't have a speech problem but she was just throwing 30 minutes in there a week so he could just keep up. I kept my cool and just did all the research all could in order to get my son into a full time autistic support class room with OT, Speech and ABA therapy. Hope to hear about your experiences with IEP meetings. I would love to change the horrible format they have going on here.

Friday, August 29, 2008

Today, I'm 30

As of today, I am 30 years old. I have two beautiful children and a loving husband. Still, we have to deal with the mounting bills and the ABA stuff we try to get for our ASD son, but today I am trying not to let any of this bring me down. I will try to enjoy my birthday with my family and try not to think about the thousands of things I always think about and the next steps I try to plan out for my children. I will do my best to just enjoy the moment today and not focus on the uncertainty of tomorrow. That is what I'm striving to do for today. 
My Serenity Prayer

Friday, August 1, 2008

9 charged in death of disabled Philly teen

PHILADELPHIA (AP) — Four social workers were among nine people charged Thursday in the death of a disabled 14-year-old girl who authorities say wasted away from neglect before dying at 42 pounds.
Danieal Kelly's mother was charged with murder; counts against other defendants range from involuntary manslaughter to perjury. District Attorney Lynne Abraham said any of the nine could have foreseen the horrific fate of Danieal, whose emaciated body was found in her mother's squalid house covered with bone-deep, maggot-infested bedsores in August 2006.
Abraham had scathing words for the city's Department of Human Services, calling its handling of the case "callous, indifferent, unconscionable" — and all too familiar.
"Danieal did not fall through the cracks," she said. "It was a failure of institutional inclination. Saving Danieal was just too much trouble."
Two of the social workers are city employees; two others worked for a company hired by DHS. Department Commissioner Anne Marie Ambrose scheduled an afternoon news conference to discuss the case.
Warrants were issued for all nine defendants Thursday. Andrea Kelly, the mother of Danieal (pronounced "Danielle"), was charged with murder, and father Daniel Kelly, who did not live with the family, was charged with child endangerment.
A 258-page grand jury report recommending the charges said not only that Andrea Kelly refused to get her daughter food, water and medical treatment, but that she repeatedly prevented one of her other children from calling an ambulance "for his obviously dying sister."
A listing for Andrea Kelly's attorney, Vincent Giusini, rang unanswered Thursday. It was not immediately clear if Daniel Kelly, 37, of Darby, had an attorney; two phone numbers listed in his name were disconnected.
Two employees of MultiEthnic Behavioral Health, a now-defunct company that DHS hired to provide social services to Danieal, falsified documents to cover up the fact they rarely, if ever, checked on her, the grand jury said.
Julius Murray and Mickal Kamuvaka were charged with involuntary manslaughter and tampering with public records.
An e-mail sent to Kamuvaka was not immediately returned. Contact information for Murray could not immediately be located.
Murray's "fraudulent nonperformance of a job" — he seldom went to the Kelly house, which he was supposed to visit twice a week — allowed Andrea Kelly to starve her daughter over a period of months, the grand jury said.
After Danieal's death, Kamuvaka directed Murray to fabricate and backdate reports on the family, grand jurors said.
DHS social worker Dana Poindexter was charged with child endangerment for what the grand jury said were his "less than meager" efforts to look into several reports over three years that Danieal, who had cerebral palsy, was not receiving medical care, social services or schooling.
"He did not complete a single investigation or risk assessment," the report said. "Indeed, his file on the family was buried at the bottom of a filing-cabinet-sized box, beneath food wrappers and unopened envelopes relating to other children's cases."
A message left for Poindexter's attorney was not immediately returned Thursday.
Another DHS employee, Laura Sommerer, faces a child endangerment charge. As Danieal's social worker for 10 months, she didn't notice Danieal's deterioration, even after a visit June 29, 2006 — about five weeks before the teen died.
"The children appeared safe and comfortable in the home," Sommerer wrote in a report, according to grand jurors.
Sommerer's attorney, Lisa Dykstra, declined to comment Thursday.
Also charged were Andrea Miles, Marie Moses and Diamond Brantley, all of Philadelphia, who were friends with Andrea Kelly. The report accuses them of perjury for telling grand jurors that Danieal had been fine on Aug. 3, 2006, the day before her festering corpse was taken from the house.
It was not immediately clear if they had attorneys. A message left for Moses was not immediately returned; phone numbers could not found for Miles and Brantley.
The report should "outrage the entire Philadelphia community" and bring about "earth-shattering, cataclysmic changes" at the Department of Human Services, Abraham said.
Abraham said that although at least 55 children have died under the agency's watch, it has given only "lip service to halfhearted corrective action."
"You can't continue to bury these children and say things are getting better when they're not," she said.
On the Net:
Grand jury report: http://www.phila.gov/districtattorney/pdfs/Grand_Jury_DHS_new.pdf

I am absolutely horrified by this story. I think about it every day. What if I'm gone and something like this happens to my child in the system. I hate to think about it, but I know its an every day reality. That's why I know I will do my best to lay a good foundation for my children today so that these things are less likely to happen to them. Read the report and see just how bad the parents were to this child. It is unbelievable.

Wednesday, July 30, 2008

Work at Home Opportunity

I found a really great work at home opportunity. It all depends on what you do with it. Step by step instructions and tutorial videos are free with this system. See for yourself at
http://candicecozart.ws

Let me know if you like it! It's great for ASD moms that need a little more income in their lives!

Potty Training with PECS

My son is 2 going on 3 and one of the hardest things I've ever had to do is potty train him. After numerous attempts with musical potty's, potty seats on the toilet and food encouragement we finally found a system that helps him ...... PECS.

The PECS system is actually working along with a daily schedule of events so that he knows when I will request for him to go to the potty. Let me spell it out.

We have a PECS chart of a daily schedule and inbetween every event I have a potty on the schedule so that he knows after this then we potty (just to get him started). But let me back up a moment on my method...

First days - tried to chart how many times he did #1 and #2 in his diaper. We devised the picture schedule and stuck to scheduled eating times so that I could time when I checked his diaper.

This took about 2 days or so to get a good chart; took a couple more days just to get him used to the schedule.

Next - I started to incorporate the potty at these times that I charted and added it to the Picture schedule. My son already knew what the potty was so I thought this would be no problem. Boy was I wrong. Everytime he went to the potty he would HOLD it. He then held it until he got his pull-up on and did everything in the Pull-up. How frustrating was this for me! I couldn't let that stop me though so I thought of Plan B. How about we eliminate the Pull-ups and leave his bottom naked all day. You know where this is going right? Well he held it and held it until he just had to go and this was not on the scheduled chart when this occured! Ugh! what to do right?

Then I found this ingenious invention.....
Tinkle Toonz sensor Saved the Day! This is the sensor that goes into the Tinkle Toonz potty. You can acutally just purchase the sensor and place it in their underware so at the moment they decided to do #1 it starts to sing and then you can train them to sit on the potty.
Since my son insisted on going in the pull-up I had to really train him to go to the potty so ...
Step 1 - Back to the schedule for meals
Step2 - No more pull-ups @ home - only training pants.. we use the all in one kind
Step 3 - sensor in and we go according to the schedule. If he decides to hold it, it's ok cause the sensor will tell me when he starts
Step 4 - Make sure the TV and anything else is turned down to a reasonable volume so you can hear the sensor
Step 5 - Have a potty close by- where you are and have the bathroom door open and ready. Make sure nothing is in your way so you can run like the wind when they start to go. My son can start and stop so I run like the wind and I also take him to the potty when I have to go, just in case this motivates him as well.
Have your PECS potty card and PECS potty schedule in the bathroom and go through the steps while on the schedule and while off - in a hurry - this will ensure that your child understands thoroughly. Make sure your schedule has the times marked when your child will go #2. They usually go at the same time every day, the sensor will not detect this. After a while, my son thought it was fun to be whisked away to the bathroom or the potty. Since he thinks it's a game, he now tells me ( in his own way) It's time to run and then comes to get me to run to the potty. Because I am happy and excited and we cheer afterwards he loves it. We still have accidents but this is helping us tremendously.
If you are interested in the Tinkle Toonz potty or sensor you can find this at http://www.tinkletoonz.com/. They also have a really good article about autism and potty training at http://www.tinkletoonz.com/special_needs.html.
I found the PECS system for potty training at http://www.do2learn.com/picturecards/printcards/2inch/imagegridswords/bathroomword.htm
Let me know how it's going! :)